My name is RJ Formanek, and I have FASD. As a person on the spectrum, I look forward to the chance for us all to get together and share experiences and knowledge about FASD, so September 9th is something I personally enjoy being able to participate in.
Embraced: The Quest to Make a Film
When our son was twelve, he exploded with a vengeance. Without warning, amidst a crowded outdoor concession stand, he power-kicked a soccer ball directly into his sister’s head. So I loaded him into a van for a road trip to explore, “why the anger?” Every few seconds he said something chilling, then contradicted it in the next sentence. I remained … Read More
What FASD is: a caregiver’s perspective
When asked to write this blog on what FASD means to me, I struggled. FASD is a complicated disability with many challenging aspects. I finally decided that, in my experience, FASD to this point has meant missed opportunities.
A caregiver’s perspective on what FASD is
I often wonder if my child’s FASD was consistently recognized from a disability lens, while framed within a strengths-based approach for interventions and support, would life be just a slight bit easier to manage?
What FASD Means to Me
Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.
“Why Red Shoes?”
Why did I choose to wear red shoes, and what do they signify to me? That is not exactly an easy question to answer in a short time, but please let me attempt to do that here.
The Fetal Alcohol Spectrum Disorder (FASD) Patient Journey Project
By engaging persons with lived experience, we were able to identify and inform service enhancement opportunities in FASD awareness, FASD assessment and diagnosis, FASD care planning and transitions, community-based FASD services and supports, addiction and mental health services, housing support services, education services, and correctional services.