I am writing as a long-time parent of adult sons who live with the challenging impacts of trauma and Fetal Alcohol Spectrum Disorder and who have been affected by the multi-generational legacy of Indian Residential Schools and colonial treatment of Canada’s First Peoples. I am writing to share my profound personal experience after a week of sadness when I was struggling to find words.
Spotlight on Service Providers: The FASD Network
This post is part of our new Feature Friday series called Spotlight on Service Providers. Over the next year, we will be featuring organizations and initiatives across Canada that provide much-needed supports and services for individuals with FASD and their families. Who We Are In Saskatchewan, a group of dedicated parents came together to form the FASD Network (the … Read More
Feature Friday: Solutions for Kids in Pain (SKIP)
Written by Dr. Katie Birnie I was thrilled to host CanFASD’s webinar on Pain as Experienced by People with FASD in November 2020 in my role as Assistant Scientific Director of Solutions for Kids in Pain (SKIP). SKIP is a knowledge mobilization network based at Dalhousie University, co-directed by Children’s Healthcare Canada, and funded by the Networks of Centres of Excellence … Read More
Book Review: FASD and the Online World
There are not many resources available to assist with managing the online world with individuals with FASD but this new book by Dr. Ira Chasnoff is a useful one.
What FASD is: a caregiver’s perspective
When asked to write this blog on what FASD means to me, I struggled. FASD is a complicated disability with many challenging aspects. I finally decided that, in my experience, FASD to this point has meant missed opportunities.
A caregiver’s perspective on what FASD is
I often wonder if my child’s FASD was consistently recognized from a disability lens, while framed within a strengths-based approach for interventions and support, would life be just a slight bit easier to manage?
What FASD Means to Me
Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.
Life with COVID-19 from a Caregivers’ Perspective
We are finally confident that people will understand what we mean when we say life is unpredictable and sometimes feels like it is spiralling out of control. It took a pandemic to have others experience what our lives are like routinely.
The Fetal Alcohol Spectrum Disorder (FASD) Patient Journey Project
By engaging persons with lived experience, we were able to identify and inform service enhancement opportunities in FASD awareness, FASD assessment and diagnosis, FASD care planning and transitions, community-based FASD services and supports, addiction and mental health services, housing support services, education services, and correctional services.
Your Guide to FASD Assessment in Manitoba
The Manitoba FASD Network recently released a new website to help guide people living in Manitoba through the FASD assessment process.
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