The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) welcomes the new Canada Disability Benefit announced on June 2, designed to reduce poverty and support the financial security of persons with disabilities. As we await further details, we urge Minister Qualtrough and the Disability Advisory Committee to consider the unique needs of individuals with fetal alcohol spectrum disorder (FASD). FASD is a complex and lifelong disability that affects at least 4% of Canadians, which is more than autism, cerebral palsy, and Tourette’s combined.
Despite the high prevalence and the complexity of FASD, the Disability Advisory Committee which advises the Canada Revenue Agency on Disability Tax Credit (DTC) eligibility does not currently have a single member with FASD lived experience on the committee. Unfortunately, this puts the FASD community at a disadvantage.
People with FASD who apply for the DTC are being rejected 50% of the time in terms of eligibility. Most are having to renew every 3-5 years and then enter the cycle of rejection and reapplication again. CanFASD would welcome the opportunity to work with the Minister and the Disability Advisory Committee to share research, evidence and the critical voice of over 1.5 million Canadians with FASD.
For several months, the Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) have been advocating for support to develop and implement a National FASD Strategy for Canada. The release of Federal Budget 2022 comes as a disappointment, as it fails to recognize the need for a strategy and does not even acknowledge the needs of Canadians with FASD.
FASD is the leading cause of neurodevelopmental disability in Canada, affecting 4% of the population – with rates being even higher in populations with compromised social determinants of health. With over 1.4 million Canadians with FASD today, there are more Canadians with FASD than autism, cerebral palsy, and Down syndrome combined. A lifelong disability, it has significant implications for physical and well-being, and Canadians with FASD struggle with a lack of diagnostics and formal supports.
“Canadians with FASD are still waiting to be acknowledged in a meaningful way by this government”, said Audrey McFarlane, Executive Director, CanFASD. “Recognizing that FASD is not only a health care issue – but intersects with homelessness, substance use, education, criminal justice, mental health, child welfare, social services, and more – the Network has been advocating for a National Strategy to better support the FASD community in Canada.”
Although Federal Budget 2022 includes some commitments that will positively impact our community, such as an employment strategy for persons with disabilities, funding to maintain trauma-informed, Indigenous led services to improve mental health and wellness, and funding to criminal legal aid services, Canadians with FASD and their families deserve to have access to concrete, individualized supports. Without these, the positive commitments in Federal Budget 2022 will only serve as piecemeal measures.
Today we are reiterating the call for a National FASD Strategy. Canada needs a coordinated, national, evidence-based approach to address FASD that provides leadership and builds on the work that has been already done at the provincial, regional and community levels. A National FASD Strategy would ensure that prevention is effective, respectful and addresses social determinants of health, while also provided for a coordinated approach to early and accurate diagnoses.
CanFASD remains committed to working with the federal government to leverage our current system with better coordination across Canada, to ensure that Canadians from coast-to-coast can access a continuum of quality supports throughout their lives.
Dr. Kelly Harding, a researcher with Laurentian University and the Canada FASD Research Network, is showcasing her art at the LUL SciArt Show to bring attention to alcohol consumption in motherhood and how industry marketing and a popular social media hashtag is playing a role.
Dr. Harding’s interactive piece, “It’s Mommy’s Turn to Wine”, explores the intricacies of the social phenomenon of the wine mom, including its darker underside. Featured at the LUSciArt Show at Science North, her art piece is a visual representation of her research findings on the impact of the #winemom hashtag on alcohol consumption and mothers.
The “wine mom” phenomenon has taken off online in recent years. In her research, Dr. Harding and her colleagues found that women use alcohol, specifically wine, to fight back against the traditional idea of what it means to be a good mother. But Instagram posts using the #winemom hashtag also portray alcohol as an acceptable form of self-care and a way to cope with the daily tasks associated with motherhood. Therein lies the darker side to the wine mom phenomenon. These posts normalize regular binge drinking and suggest that women use alcohol as a one-stop shop coping strategy for their daily stressors and mental health challenges. The COVID-19 pandemic has led to the emergence of new versions of the wine mom meme, increasing existing concerns about elevated alcohol use and mental health challenges among women, and particularly mothers of young children.
This culture and its popularity is especially concerning for experts working in the field of Fetal Alcohol Spectrum Disorder (FASD). Increased alcohol consumption in women of childbearing age can lead to increased risk of alcohol-exposed pregnancies. It can also lead to problematic relationships with alcohol that can carry into pregnancy. FASD is a lifelong disability impacting the brain and body of people who were prenatally exposed to alcohol. It already impacts 1.5 million Canadians, more people than autism, cerebral palsy, and Down syndrome combined.
While the #winemoms corner online is an opportunity for women to connect and share the trials and tribulations of motherhood, its popularity highlights the growing need for better supports for women’s mental health.
Dr. Harding’s interactive art piece will be on display at Science North until April 10th as part of the Tenth Annual LUL SciArt Show.
Quotes:
“In this piece I really wanted to highlight how engaging the wine mom community can be. It’s funny and bright and, on the surface, it seems like harmless good fun that fosters a sense of community. People can get sucked in by the humor and camaraderie, perhaps not recognizing how it impacts their relationship with alcohol until it’s too late. The ‘wine mom’ lifestyle is being packaged, marketed, and sold to women with branded clothing, accessories, and homeware. My hope is that this art piece encourages people to critically think about why they connect with the #winemom identity and recognize that participation in this culture is not the only way to “survive” motherhood.”
Dr. Kelly Harding, Research Associate and Director of Research Administration, Canada FASD Research Network
"Alcohol use among women is increasing with an increase in products and targeted advertising for women that markets alcohol as a way to have fun, cope with stressful situations, and relax. The normalization of alcohol use is concerning and is contributing to increased rates of alcohol use during pregnancy. Dr. Harding's work helps us understand the factors that may be contributing to women's alcohol use in pregnancy and motherhood so that we can support women in finding healthy coping strategies and other opportunities for connection."
Lindsay Wolfson, Research Manager, BC Centre of Excellence for Women’s Health
“Dr. Harding’s research shows that women are finding connection and support in the wine mom community, but it comes with risks to their health and wellbeing. Women deserve support and services that alleviate stressors and address mental health concerns while simultaneously encouraging their health and wellbeing and that of their families. CanFASD is pushing for a national FASD strategy that provides such supports and gives women good information and support to reduce or stop substance use, especially during pregnancy.”
Audrey McFarlane, Executive Director, CanFASD Research Network
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
Contact:
Victoria Bailey, Communications Coordinator
Telephone: 705-331-8529
Email: victoria.bailey@canfasd.ca
The Fetal Alcohol Spectrum Disorder (FASD) Society for BC, governing body of The Asante Centre, has received a major grant to better identify and support individuals with FASD and other complex neurodevelopmental needs in the justice system.
The 3-year project begins immediately and serves legal professionals across the province of BC. It is a collaboration with Canada FASD Research Network (CanFASD) and researchers across the country, including Dr. Kaitlyn McLachlan from the University of Guelph, Dr. Jacqueline Pei from the University of Alberta, and Dr. Mansfield Mela from the University of Saskatchewan.
The ultimate goal of the project is to improve the services and supports available to individuals with FASD and other neurodevelopmental conditions in the legal system. Research suggests that as many as 30 to 60% of people with FASD seen in clinical contexts reported experiencing contact with the criminal justice system. Estimates of FASD prevalence in correctional and forensic settings range as high as 10- 23%.
However, FASD often goes unrecognized or undiagnosed in the legal system. The project’s partners aim to address this by updating The Asante Centre’s existing screening tool that helps professionals in the legal system identify people at risk for FASD or other neurodevelopmental conditions. They also seek to build a workforce of legal and justice professionals who are FASD-informed and who can identify individuals who may have FASD and make accommodations to their practice to better support these individuals.
The impacts of this disability on social, behavioral, and physical functioning often result in people with FASD constantly cycling through the justice system. Traditional sentences and conditions that people with FASD are asked to meet often aren’t achievable. Instead, improved supports will ultimately lead to improved trajectories and outcomes.
Commenting on the award, Asante Centre Executive Director, Sharon DeLalla, says: “We are thrilled to have received this support from The Law Foundation of British Columbia and to have the opportunity to work with such expert research partners. We are confident the project will profoundly enhance systems and serve people with FASD and other neurodevelopmental conditions to experience improvements in fair access to justice.”
Audrey McFarlane, Executive Director of the CanFASD Research Network is also very excited about the project, stating “It is encouraging to see professional associations stepping up and showing that they need and value the research being done on this often-overlooked disability. We are fortunate to work with such strong researchers and partners who are paving the way towards improved screening and support for FASD, particularly in higher risk environments like the justice system.”
Learn more about The Law Foundation of British Columbia and grant opportunities, www.lawfoundationbc.org/.
Engage with The Asante Centre online, www.asantecentre.org, on Facebook, or Twitter. Engage with CanFASD Research Network online, www.canfasd.ca, on Facebook or Twitter
Email: sdelalla@asantecentre.org
Victoria Bailey, Communications Coordinator CanFASD Research Network Telephone: 705-331-8529
Email: victoria.bailey@canfasd.ca
This week, a team of researchers and partners published findings that show a startling gap in the evidence about treatment for mental health and substance use challenges for people with Fetal Alcohol Spectrum Disorder (FASD).
FASD is a lifelong disability impacting the brain and body of people exposed to alcohol in the womb. Mental health and substance use needs are an important consideration in this population, as over 90% of people with FASD are estimated to experience challenges with mental health, and an estimated 35-55% of adolescents and adults experience problematic substance use.
The team - made up of researchers and partners from the Canada FASD Research Network (CanFASD) - reviewed literature on mental health and substance use treatments for people with FASD. Of more than 10,000 titles reviewed, they found only three studies where researchers studied the impacts of interventions directly targeting the mental health or substance use needs of people with FASD.
None of the studies identified in the review explored how to best support people with FASD who are experiencing severe mental illness or acute mental health or addictions crises, and very few were designed for adolescents or adults. Instead, most of the studies were designed to build functional skills among children with FASD, with improved mental health as an indirect by-product of treatment.
“This study reveals a huge gap in evidence-based practice for supporting mental health and substance use needs of people with FASD,” says Dr. Katherine Flannigan, one of the study authors. “Without solid data about what treatments work, or how traditional treatments may be modified, we really can’t say how best to support this group in these areas.”
Although it is possible that clinicians and other service providers on the front-lines are providing effective mental health and substance use supports for people with FASD, there is next to no research published that looks into the impact of these efforts.
According to Dr. Flannigan, “This research gives us a great starting point to build upon in the future, but we need to know more about how to address the immediate challenges that people with FASD face in mental health and substance use today.”
Quotes:
“The hope is with more understanding will come more action - action that will improve FASD prevention, intervention, and diagnosis in Canada.”
Audrey McFarlane, CanFASD Executive Director
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
Media contact:
Victoria Bailey
Communications Coordinator
705-331-8529
victoria.bailey@canfasd.ca
The Canada FASD Research Network (CanFASD) recently received funding from Health Canada to support the development of an online initiative that will improve substance use supports for people in the FASD community.
Fetal alcohol spectrum disorder (FASD) is a lifelong disability impacting people who were exposed to alcohol during fetal development. It is estimated that 4% of Canadians have FASD. According to the National FASD Database, 48% of people with FASD are using substances, with alcohol and cannabis being the most popular.
CanFASD received funding from Health Canada’s Substance Use and Addictions Program to run a three-year project to address substance use in the FASD community. Their goal is to develop an online training program that teaches health and social service providers how to best support people with FASD who are using substances.
Traditional substance use treatments don’t usually help individuals with FASD. Their disability, and the many co-occurring mental health issues they experience, increases the likelihood of relapse after treatment. This training will give professionals and families alike the tools to effectively support people with FASD in their recovery.
This program is especially important as rates of alcohol and cannabis use are on the rise during COVID-19. CanFASD worries that the pandemic will increase the rates of addiction in this population as people turn to substances to handle their stress, anxiety, and boredom.
The announcement of this project coincides with end of FASD Awareness Month. Held annually in September, FASD Month focuses on raising awareness and improving supports for people with FASD.
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
To speak with a CanFASD expert regarding this project contact:
Kathy Unsworth, Managing Director
613.240.7007
kathy.unsworth@canfasd.ca
For more information on CanFASD, please visit: www.canfasd.ca
The Government of Canada has officially declared the month of September as Fetal Alcohol Spectrum Disorder (FASD) Awareness Month. FASD is a lifelong disability that affects the brain and body of someone exposed to alcohol during fetal development. There is no cure for FASD, but this disability is preventable if women and girls have access to the right supports.
“The addition of FASD Month to the government’s calendar of health promotion days is a huge step forward in encouraging support for this growing movement,” says Audrey McFarlane, Executive Director of the Canada FASD Research Network (CanFASD).
International FASD Awareness Day is held every year on September 9 to recognize the importance of going alcohol-free during the full nine months of pregnancy. Many FASD organizations across Canada host FASD awareness events throughout the month of September. CanFASD has now successfully petitioned the government to officially declare September as FASD Awareness Month on the Calendar of Health Promotion Days.
FASD is the leading developmental disability in Canada, impacting 4% of the population. Despite it being more common than autism, cerebral palsy, and Down syndrome combined, FASD is not well understood by the majority of Canadians.
Increasing Canadians’ awareness and understanding of FASD in Canada is a key factor in improving FASD prevention, diagnosis, and interventions.
Quotes:
“The hope is with more understanding will come more action - action that will improve FASD prevention, intervention, and diagnosis in Canada.”
Audrey McFarlane, CanFASD Executive Director
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
To speak with a CanFASD expert about FASD Month, contact:
Victoria Bailey Communications Coordinator
705-331-8529
victoria.bailey@canfasd.ca
For more information on CanFASD, please visit: www.canfasd.ca
Fetal alcohol spectrum disorder (FASD) is a developmental disability that impacts 4% of Canadians. FASD often goes undiagnosed or is misdiagnosed, so the prevalence rate may be higher than the current estimate.
The key cause of FASD is exposure to alcohol during fetal development. But many social and health factors contribute to the risk of FASD beyond alcohol use. Women may drink during pregnancy because they may be unaware they are pregnant, they not know the risks of drinking alcohol during pregnancy, or they have substance use problems and related health and social challenges.
“To prevent FASD, we need to address both alcohol use in pregnancy and the range of health and social factors that contribute to women’s health and wellbeing” explains Dr. Nancy Poole, the Director of the Centre of Excellence for Women’s Health. “With awareness, supportive policies, and the right supports and services for women and their partners, FASD can be prevented.”
In the meantime, a greater awareness and understanding of FASD in Canada is needed. Despite it being more common than autism, cerebral palsy, and Down syndrome combined, FASD is not well understood by many Canadians.
“Individuals with FASD and their caregivers need supports and services to help them succeed. CanFASD is working with stakeholders to identify evidence-based best practices and encourage governments to address this issue in a strategic and collaborative way,” says Audrey McFarlane, Executive Director of the Canada FASD Research Network (CanFASD).
CanFASD is among many organizations celebrating FASD Awareness Month this September. They have launched a campaign called “FASD is”, encouraging Canadians to look beyond the stereotypes and understand what it truly means to have FASD.
“The hope is that with more understanding will come more action - action that will improve FASD prevention, intervention, and diagnosis in Canada,” says McFarlane.
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder
To speak with a CanFASD expert regarding FASD Awareness Month, contact:
Victoria Bailey, Communications Coordinator
(705) 331-8520
victoria.bailey@canfasd.ca
The Canada Fetal Alcohol Spectrum Disorder Research Network is aware of the concerns regarding the Novel Coranavirus (COVID-19) and is monitoring the situation closely. CanFASD is committed to providing Canadians with reliable information to encourage evidence informed decision making about FASD. We are dedicated to this vision now more than ever during this challenging time in our history.
As always, our Foundations in FASD online course is available to Canadians, to help improve the understanding of FASD in our communities. Recognizing that school staff are experiencing more free time as a result of disruptions to their schedule, we are also offering our education system specific online training course free to individuals working in our member jurisdictions.
We are continuing to provide up-to-date information to Canadians about FASD. Recently our content has expanded to include resources for families, professionals, and service providers about FASD and the COVID-19 pandemic. These have included tips for healthcare providers working with individuals with FASD, tips for caregivers supporting individuals with FASD through the COVID-19 pandemic, tips for individuals with FASD during the COVID-19 pandemic, information for managing stress surrounding COVID-19, and much more.
Many service agencies have adapted their supports to be virtual for families and individuals. These changes have included increased food security efforts, increased virtual counselling efforts; and moving training opportunities to online platforms. We are trying to highlight many of these on our platforms to inspire and encourage service providers throughout this pandemic. We will continue to adapt our practice and work to support agencies and service providers to ensure they have the information they need to adjust.
We are all in this together. Please join us in helping to ensure the health and safety of our global communities by staying up to date with reliable and evidence-based resources.
The Public Health Agency of Canada provides regular updates on:
- The current situation, including the number of confirmed cases in Canada
- The risk to the Canadian population, and
- How Canada is monitoring the spread of COVID-19 cases
What CanFASD Stakeholders can do:
- Follow the safety precautions set out by the Public Health Agency of Canada
- Follow the CanFASD Connect Blog for up to date information and helpful resources
- Reshare the information within their own networks.
- FASD service agencies should use the CanFASD Social Media package (TBA) to ensure consistent messaging
- Stay connected to local FASD support groups and service agencies as many continue to operate virtually.
Other Resources:
- FASD Success podcasts
- Saskatchewan FASD Network
- Canada FASD Research Network
- New Brunswick FASD Centre of Excellence
- Edmonton Fetal Alcohol Network
Contacts
info@canfasd.ca
www.canfasd.ca
Follow us on Facebook
Follow us on Twitter
Follow us on LinkedIn
Le Réseau canadien de recherche sur le trouble du spectre de l’alcoolisation fœtale (CanFASD) est au courant des préoccupations concernant le nouveau coranavirus (COVID-19) et suit la situation de près. CanFASD s'engage à fournir aux Canadiens des informations fiables pour encourager la prise de décisions éclairées par des données probantes sur le TSAF. Nous nous consacrons plus que jamais à cette vision en cette période difficile de notre histoire.
Comme toujours, notre cours en ligne sur les fondements du TSAF (Foundations in FASD) est offert aux Canadiens (en anglais) pour aider à améliorer la compréhension du TSAF dans nos collectivités. Conscients que le personnel scolaire a plus de temps libre en raison des perturbations de son horaire, nous proposons également notre cours de formation en ligne spécifique à notre système éducatif gratuitement pour les personnes travaillant dans nos juridictions membres.
Nous continuons de fournir aux Canadiens des renseignements à jour sur le TSAF. Récemment, notre contenu s'est élargi pour inclure des ressources pour les familles, les professionnels et les fournisseurs de services sur le TSAF et la pandémie de COVID-19. Celles-ci comprennent des conseils pour les fournisseurs de soins de santé travaillant avec des personnes atteintes de TSAF (ici en anglais), des conseils pour les soignants aidant les personnes atteintes de TSAF pendant la pandémie de COVID-19 (ici en anglais), des conseils pour les personnes atteintes de TSAF pendant la pandémie de COVID-19 (ici en anglais), des informations pour gérer le stress entourant le COVID-19 (ici en anglais), et bien d'autres.
De nombreux organismes de services ont adapté leurs supports pour fournir un accès virtuel pour les familles et les individus. Ces changements incluent des efforts accrus en matière de sécurité alimentaire, de counselling virtuel; et un transfert d’opportunités de formation sur des plateformes en ligne. Nous essayons de répertorier un grand nombre de ces éléments sur nos plateformes pour inspirer et encourager les fournisseurs de services durant cette pandémie. Nous continuerons d'adapter nos pratiques et de travailler pour soutenir les organismes et les fournisseurs de services afin de nous assurer qu'ils disposent des informations dont ils ont besoin pour s'adapter.
Nous sommes tous solidaires. Veuillez vous joindre à nous pour aider à assurer la santé et la sécurité de nos communautés en vous informant et en restant à jour au moyen de ressources fiables et fondées sur des preuves.
L'Agence de la santé publique du Canada fournit des mises à jour régulières sur :
• La situation actuelle, y compris le nombre de cas confirmés au Canada
• Les risques pour la population canadienne, et
• La façon dont le Canada surveille la propagation des cas de COVID-19
Ce que les partenaires de CanFASD peuvent faire :
• Suivre les précautions de sécurité établies par l'Agence de la santé publique du Canada
• Suivre le blogue CanFASD Connect (en anglais) pour obtenir des informations à jour et des ressources utiles
• Partager les informations au sein de leurs propres réseaux
• Les agences de services sur le TSAF devraient utiliser l'ensemble de médias sociaux CanFASD (à venir bientôt) pour assurer une communication cohérente et uniforme
• Rester en contact avec les groupes de soutien locaux sur le TSAF et les organismes de services, puisque beaucoup continuent de fonctionner virtuellement.
Autres ressources:
- FASD Success podcasts (en anglais)
- Saskatchewan FASD Network (en anglais)
- Canada FASD Research Network (en anglais)
- Centre d’excellence TSAF du Nouveau-Brunswick
- Edmonton Fetal Alcohol Network (en anglais)
Contacts :
info@canfasd.ca
www.canfasd.ca
Suivez-nous sur Facebook
Suivez-nous sur Twitter
Suivez-nous sur LinkedIn
(April 16, 2020) A doctorate candidate from McGill University and the Montreal Clinic Research Institute (IRCM) has won the national Sterling Clarren FASD Research Award for his research on how fetal alcohol spectrum disorder (FASD) is portrayed in Canadian media.
FASD is a lifelong disability that affects the brain and body of people who were exposed to alcohol during fetal development. The Canada FASD Research Network (CanFASD) created the Sterling Clarren Award in 2015 to celebrate the achievements of students and early career researchers working to address the complexities of FASD in Canada.
John Aspler is a PhD student at McGill University and IRCM. He won the 2020 Sterling Clarren Award for his research studying how fetal alcohol spectrum disorder (FASD), alcohol, and pregnancy are portrayed in Canadian print media, and how members of the FASD community feel about that coverage.
The media can play a key role in shaping Canadians’ knowledge and understanding of important topics. With approximately 4% of the population impacted by FASD, this is a key public health concern. However, the majority of Canadians do not have a strong understanding of this disorder.
This lack of knowledge can perpetuate negative stigma surrounding alcohol, pregnancy, and FASD. Aspler's research explored how the media talks about these topics and how this portrayal could contribute to stigma and stereotypes associated with FASD, alcohol, and pregnancy. He also spoke with individuals with FASD, their families, and their health and support providers to better understand their daily experiences with stigma.
The award was named after Dr. Sterling Clarren to honour his contribution to and leadership in the field of FASD. Dr. Clarren is one of the world’s earliest researchers in the field of FASD and a former member of the CanFASD Research Network. With this publication, Aspler is following in his footsteps metaphorically, and leading the charge to make a positive impact in the lives of individuals with FASD and their families.
Quotes:
“There were many amazing research projects that we had to choose from, but this work stood out to the selection committee because of its ability to help us understand the complexities around stigma and how society contributes to that stigma. It is very powerful work.”
Audrey McFarlane, CanFASD Executive Director
"I am so honoured to have won the Sterling Clarren FASD Research Award from CanFASD and delighted to have the opportunity to share my work, not just with academics and clinicians, but directly with family members and individuals with FASD. My work aims to understand the FASD community's concerns and priorities about stereotypes and stigma, with the goal of finding strategies to improve communication around FASD, alcohol, and pregnancy."
John Aspler, Sterling Clarren Award Winner
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
To speak with a CanFASD expert regarding the Sterling Clarren Award, please contact:
Audrey McFarlane
1 (780) 815-0406
audrey.mcfarlane@canfasd.ca
The Canada Fetal Alcohol Spectrum Disorder Research Network and the Centre of Excellence for Women’s Health are committed to supporting Canadians, our stakeholders, and public health efforts by providing reliable information to support sound decision making related to alcohol use in the context of the current COVID19 pandemic.
Today, it has been reported that Canadians have increased their alcohol use during this period of isolation (CCSA report). The highest increase of alcohol use is for people aged 18-54. There is a prediction that there will be a baby boom in 2021 due to the isolation that couples of child bearing age are experiencing.
We encourage Canadians to be mindful that alcohol use during pregnancy can cause harm to fetal health and result in lifetime effects known as Fetal Alcohol Spectrum Disorder (FASD). There are many factors in addition to alcohol use, that affect risk for FASD, such as the mother’s overall health, nutrition, use of other substances, stress level and connection to prenatal care, as well as genetics. There is no known safe time or level of drinking during pregnancy, thus experts agree that it is safest not to drink alcohol in pregnancy and encourage reducing or stopping alcohol consumption by women and their partners in the preconception and perinatal period.
We encourage Canadians to:
- Ensure that they are using a reliable contraceptive if they are not planning to be pregnant.
- Reduce or eliminate alcohol use when planning a pregnancy.
- Be mindful of alcohol use if you are pregnant. The safest approach is to not use alcohol during this time.
- Seek out alternative coping strategies and support for managing the influences or pressures to drink.
- Seek information about risks and available supports from reliable sources.
- Talk to your health provider or other trusted practitioners.
Suggested resources:
- Canada’s Low Risk Drinking Guidelines
- Understanding Alcohol use and Pregnancy
- Girls, Women, Alcohol, and Pregnancy
- CEWH publications on maternal health and substance use
We encourage our Stakeholders to:
- To stay up to date with reliable information. The Public Health Agency of Canada provides regular updates.
- Follow the CanFASD Connect Blog for up to date information and helpful resources
- Reshare the information for their own networks.
- Maintain consistent messaging by using the CanFASD Social Media package (TBA)
Contacts
info@canfasd.ca
www.canfasd.ca
Follow us on Facebook
Follow us on Twitter
Follow us on LinkedIn
Le Réseau canadien de recherche sur le trouble du spectre de l’alcoolisation fœtale (CanFASD) et le Centre of Excellence for Women’s Health (Centre d'excellence pour la santé des femmes) se sont engagés à soutenir les Canadiens, nos partenaires et les efforts de santé publique en fournissant des informations fiables pour appuyer la prise de décisions judicieuses concernant la consommation d'alcool dans le contexte de la pandémie actuelle de la COVID-19.
Aujourd'hui, il a été signalé que les Canadiens ont augmenté leur consommation d'alcool au cours de cette période d'isolement. (Vous pouvez consultez le rapport du Centre canadien sur les dépendances et l’usage de substances en anglais ici. Article en français ici). La plus forte augmentation de consommation d'alcool concerne les personnes âgées de 18 à 54 ans. On prévoit un baby-boom en 2021 en raison de l'isolement que vivent les couples en âge d’avoir des enfants.
Nous encourageons les Canadiens à garder à l'esprit que la consommation d'alcool pendant une grossesse peut nuire à la santé du fœtus et entraîner des effets à vie appelés Troubles du spectre de l'alcoolisation fœtale (TSAF). Outre la consommation d'alcool, de nombreux facteurs ont une influence sur le risque de TSAF, comme la santé générale de la mère, la nutrition, l'utilisation d'autres substances, le niveau de stress et le lien avec les soins prénatals, ainsi que la génétique. Il n'y a pas de moment ni de quantité de consommation d'alcool « sûr » connu pendant la grossesse pour consommer de l’alcool; les experts conviennent donc qu'il est plus sûr de ne pas boire d'alcool pendant la grossesse et d'encourager la réduction ou l'arrêt de la consommation d'alcool par les femmes et leurs partenaires pendant les périodes préconceptionnelle et périnatale.
Nous encourageons les Canadiennes à:
- s’assurer d’utiliser un contraceptif fiable si elles ne cherchent pas à avoir un enfant.
- réduire ou éliminer la consommation d'alcool lors de la planification d'une grossesse.
- faire attention à la consommation d'alcool si elles sont enceintes.
- L'approche la plus sûre consiste à ne pas consommer d'alcool pendant cette période.
- rechercher des stratégies d'adaptation et de soutien alternatives pour gérer les influences ou les pressions exercées face à la consommation d’alcool.
- rechercher des informations sur les risques et les supports disponibles auprès de sources fiables.
parler à leur fournisseur de soins de santé ou à d'autres praticiens de confiance.
Ressources suggérées:
- Directives de consommation d'alcool à faible risque du Canada
- Comprendre la consommation d’alcool en lien avec la grossesse (en anglais : Understanding Alcohol use and Pregnancy)
- Filles, femmes, alcool et grossesse (lien en anglais Girls, Women, Alcohol, and Pregnancy)
- Publications des Centres d’excellence pour la santé des femmes (liens en anglais CEWH publications on maternal health and substance use)
Nous encourageons nos partenaires à:
- se tenir à jour avec des informations fiables. L'Agence de la santé publique du Canada fournit des mises à jour régulières.
- suivre le blogue CanFASD Connect (en anglais) pour obtenir des informations à jour et des ressources utiles
- partager les informations pour leurs propres réseaux.
- maintenir des communications cohérentes en utilisant le dossier média sociaux de CanFASD (à venir bientôt)
Contacts :
info@canfasd.ca
www.canfasd.ca
Suivez-nous sur Facebook
Suivez-nous sur Twitter
Suivez-nous sur LinkedIn
(February 4, 2020) The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) Board of Directors and select staff are meeting in Edmonton, Alberta at the beginning of February to discuss nation-wide Fetal Alcohol Spectrum Disorder (FASD) strategic priorities.
FASD is a lifelong disability that affects the brain and body of people who were exposed to alcohol during fetal development. CanFASD is Canada’s first comprehensive national research network focuses on addressing the complexities of FASD.
A key component to CanFASD’s success is the partnerships they’ve developed with individuals and organizations across Canada and around the world. Their trip to Edmonton will allow them to further develop these partnerships within organizations and communities in Alberta.
Community members within Edmonton will have the opportunity to interact with experts in the field of FASD at a meet and greet on February 4, 2020. Members of local school boards, individuals from FASD organizations, government ministers, and university students have already RSVP’d for the event.
In addition to this event, members of the CanFASD Board of Directors will be meeting with staff to develop to review of CanFASD’s current initiatives in the areas of FASD prevention, intervention, and diagnosis. A major product of these meetings will be the finalization of CanFASD’s new Strategic Plan, which outlines the path the organization has to follow to remain a national leader in FASD research.
CanFASD staff and board members will also be meeting with local organizations to learn more about the current supports and services available to individuals with FASD. The discussions will revolve around programs servicing youth with FASD, research opportunities with First Nation communities, new intervention models, and the Alberta FASD Strategy.
Quotes:
"We are very excited for the opportunity to connect with such incredible individuals and programs in Edmonton that are working to address FASD. We hope to take some of the lessons we learn through these connections and apply them to nation-wide FASD initiatives”
Audrey McFarlane, CanFASD Executive Director
"It is always inspiring to have meetings in Alberta and hear about the work that is being done here. Alberta was one of the first provinces in Canada to develop and implement a provincial FASD strategy and CanFASD, as well as our other member jurisdictions, benefit from their vision and leadership in the field.”
Kathy Unsworth, CanFASD Managing Director
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
To speak with a CanFASD expert regarding the scheduled CanFASD events in Edmonton please contact:
Audrey McFarlane
1 (780) 815-0406
audrey.mcfarlane@canfasd.ca
(Edmonton, Alberta) The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) Board of Directors and staff members are meeting in Edmonton, Alberta at the beginning of February to discuss nation-wide Fetal Alcohol Spectrum Disorder (FASD) strategic priorities.
CanFASD is hosting ae evening meet and greet where members from local organizations have the opportunity to interact with experts in the field. Members of local school boards, individuals from FASD organizations, government ministers, and university students have already RSVP’d for the event. Media personnel are invited to attend.
What: Members of the Canada FASD Research Network board and staff are holding a meet and greet to connect with local individuals and organizations working to address FASD. Media personnel are also invited to attend.
Who: Audrey McFarlane, CanFASD Executive Director; Dr. Jacqueline Pei, CanFASD Senior Research Lead; Tim Moorhouse, CanFASD Board Chair; and many other CanFASD staff, board members, and individuals from local organizations.
When: Tuesday February 4, 2020 from 5:30pm – 7:30pm
Where: The Matrix Hotel, Quartz Ballroom A, 10640 100 Ave NW, Edmonton
For more information, please contact Audrey McFarlane by phone at 1 (780) 815-0406 or by email at audrey.mcfarlane@canfasd.ca
###
The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder. For more information on CanFASD, please visit: https://canfasd.ca/.
FOR IMMEDIATE RELEASE
(December 11, 2019)
For more information contact: Annette Cormier
Provincial Program Manager, NB FASD
1 (506) 869-3571
annette.cormier2@vitalitenb.ca
A team from New Brunswick are the first ever recipients of CanFASD’s Claudette Bradshaw Innovation Award for a ground-breaking model that addresses Fetal Alcohol Spectrum Disorder (FASD) with Indigenous communities.
(Dieppe, New Brunswick) A team of FASD service providers including Dr. Nicole LeBlanc of the Vitalité Health Network and Annette Cormier of the NB FASD Centre of Excellence will receive the CanFASD Claudette Bradshaw Innovation Award for their ground- breaking Dream Catcher service delivery model. The Dream Catcher model was developed in partnership with Indigenous elders to improve FASD supports and services with Indigenous communities.
Claudette Bradshaw, former Member of Parliament and advocate for women in poverty, recently retired from the Canada FASD Research Network (CanFASD) Board of Directors. CanFASD created this award to recognize her many years of service to the field of FASD, early education, and homelessness. She will be visiting Moncton, New Brunswick on January 9, 2020 to present this award to LeBlanc and Cormier.
Media personnel are invited to attend this event. This is an opportunity to witness a local New Brunswick team receive a national award and to interact with experts in the field of FASD from across Canada.
What: A team of service providers from New Brunswick will be receiving CanFASD’s inaugural Claudette Bradshaw Innovation Award for a service delivery model that addresses Fetal Alcohol Spectrum Disorder (FASD) with Indigenous communities. Mme. Claudette Bradshaw, former Member of Parliament and retired CanFASD Board Member will be presenting this award to the team.
Who: Mme Claudette Bradshaw, former Member of Parliament; Annette Cormier from the NB FASD Centre of Excellence; and Dr. Nicole LeBlanc of the Réseau de Santé Vitalité Health Network
When: Thursday January 9, 2020 at 11:30 am
Where: The Four Point Moncton, 40 Lady Ada Blvd, Moncton, New Brunswick
For more information, please contact Annette Cormier by phone at 1 (506) 869-3571 or by email at annette.cormier2@vitalitenb.ca.
###
The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder. For more information on CanFASD, please visit: https://canfasd.ca/.
Team from New Brunswick are the first ever recipients of the CanFASD’s Claudette Bradshaw Innovation Award for a ground-breaking model that addresses Fetal Alcohol Spectrum Disorder (FASD) with Indigenous communities.
(December 11, 2019) The inaugural Claudette Bradshaw Innovation Award was developed by the CanFASD Research Network to recognize the work of individuals and organizations across Canada using innovative approaches to improve the lives of individuals with Fetal Alcohol Spectrum Disorder (FASD).
The award is named after Claudette Bradshaw, a former Member of Parliament, a champion for woman in poverty, and an early advocate for the importance of addressing prenatal alcohol exposure. Mme. Bradshaw recently retired from the CanFASD Board of Directors. This award recognizes her dedication and impact in the field of FASD, early education, and homelessness.
The recipients of this inaugural award are a team of service providers from the New Brunswick FASD Centre of Excellence, a member of the Vitalité Health Network authority. Their Dream Catcher service delivery model is the focus of this award.
The Dream Catcher is an innovative model designed in partnership with Indigenous elders. It provides a framework for service providers to tailor resources and supports specifically to each client. It takes into consideration the skills and needs of not only the client, but their support system as well. This holistic, people-centered practice that ensures that Indigenous clients with FASD and those surrounding them are involved in supporting the individual throughout their lifetime. The Dream Catcher Service Delivery Model serves not only First Nation Communities, but NB FASD has implemented this approach with all of our clients across the province.
The New Brunswick FASD Centre of Excellence is one of two centers offering FASD assessment in the province of New Brunswick, and one of only two bilingual clinics in Canada. It is through this organization that the Dream Catcher model is currently being implemented. The NB FASD team has experienced some success from this model, but to this date have not had the opportunity to evaluate it.
The funding from the CanFASD 2019 Claudette Bradshaw Innovation Award will help the NB FASD Centre of Excellence fund research efforts to measure the effectiveness of the Dream Catcher model and identify any areas for improvement.
Claudette Bradshaw will present this award to Dr. Nicole LeBlanc of the Vitalité Health Network and Annette Cormier of the NB FASD Centre of Excellence in Moncton, New Brunswick on January 9, 2020.
Quotes:
“I am very honoured to be the name sake of this award and excited to have the opportunity to present this award to an organization that is doing incredible work to improve the lives of people with FASD.”
Mme. Claudette Bradshaw, Former CanFASD Board Member
“We are so pleased to present this Innovation award to the FASD Centre of Excellence for their unique Dream Catcher program. CanFASD wants to inspire others to think creatively when serving individuals with FASD and to create hope with these positive stories.”
Audrey McFarlane, Executive Director, CanFASD
About CanFASD:
CanFASD is Canada’s first national Fetal Alcohol Spectrum Disorder (FASD) research network. CanFASD works collaboratively with researchers and partners across the nation to address complexities of FASD. Our mission is to produce and maintain national, collaborative research for all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.
To speak with someone regarding the Claudette Bradshaw award ceremony please contact:
Annette Cormier, B.Sc. Inf.
506-869-3571
annette.cormier2@vitalitenb.ca
For more information on CanFASD, please visit our website or contact:
Victoria Bailey
Communications Coordinator, CanFASD
705-331-8529
victoria.bailey@canfasd.ca
POUR DIFFUSION IMMÉDIATE
(11 décembre 2019)
Pour plus de renseignements contactez:
Annette Cormier
Gestionnaire provinciale du programme, NB FASD
1 (506) 869-3571
annette.cormier2@vitalitenb.ca
Les membres d’une équipe du Nouveau-Brunswick seront les tout premiers récipiendaires du Prix de l’innovation Claudette Bradshaw de CanFASD pour un modèle novateur qui traite des troubles du spectre de l’alcoolisation fœtale (TSAF) dans les communautés autochtones.
(Dieppe, Nouveau-Brunswick) Une équipe de fournisseurs de services en matière de TSAF, comprenant la Dre Nicole LeBlanc du Réseau de santé Vitalité et Annette Cormier du Centre d'excellence en TSAF du Nouveau-Brunswick, recevra le Prix de l'innovation Claudette Bradshaw de CanFASD pour son modèle novateur de prestation de services, Capteur de rêves. Le modèle Capteur de rêves a été développé en partenariat avec les aînés autochtones pour améliorer le soutien et les services de TSAF avec les communautés autochtones.
Claudette Bradshaw, ancienne députée fédérale et défenseur des femmes vivant dans la pauvreté, a récemment pris sa retraite du conseil d'administration du Réseau canadien de recherche sur le TSAF (CanFASD). CanFASD a créé ce prix pour souligner ses nombreuses années de service dans le domaine du TSAF, de l'éducation précoce et du sans-abrisme. Elle se rendra à Moncton, au Nouveau-Brunswick, le 9 janvier 2020, pour remettre ce prix à LeBlanc et à Cormier.
Le personnel des médias est invité à assister à cet événement. C'est l'occasion de voir une équipe locale du Nouveau-Brunswick recevoir un prix national et d'interagir avec des experts dans le domaine du TSAF de partout au Canada.
Quoi: Une équipe de fournisseurs de services du Nouveau-Brunswick recevra le tout premier Prix d'innovation Claudette Bradshaw de CanFASD pour un modèle de prestation de services qui s'attaque aux troubles du spectre de l'alcoolisation fœtale (TSAF) dans les communautés autochtones. Madame Claudette Bradshaw, ancienne députée fédérale et membre à la retraite du conseil d'administration de CanFASD, remettra ce prix à l'équipe.
Qui: Mme Claudette Bradshaw, ancienne députée fédérale; Annette Cormier du Centre d'excellence en TASF du Nouveau-Brunswick; et Dre Nicole LeBlanc du Réseau de santé Vitalité
Quand: jeudi 9 janvier 2020 à 11h30
Où: Four Point Moncton, 40 Boulevard Lady Ada à Moncton, Nouveau-Brunswick
Pour plus de renseignements, veuillez contacter Annette Cormier par téléphone au 1 (506) 869-3571 ou par courriel à annette.cormier2@vitalitenb.ca.
###
Le Réseau canadien de recherche CanFASD est le premier réseau national de recherche sur les troubles de l’alcoolisation fœtale (TSAF) au Canada. CanFASD travaille en collaboration avec des chercheurs et des partenaires de tout le pays pour traiter les complexités du TSAF. Notre mission est de produire et de maintenir des recherches nationales concertées conçues pour être partagées avec tous les Canadiens, déboucher sur des stratégies de prévention et des services de soutien améliorés pour les personnes touchées par le trouble du spectre de l'alcoolisation fœtale. Pour plus de renseignements sur CanFASD, veuillez visiter: https://canfasd.ca/.
Les membres d’une équipe du Nouveau-Brunswick seront les tout premiers récipiendaires du Prix de l’innovation Claudette Bradshaw de CanFASD pour un modèle novateur qui traite des troubles du spectre de l’alcoolisation fœtale (TSAF) dans les communautés autochtones.
(11 décembre 2019) Le premier Prix de l'innovation Claudette Bradshaw a été créé par le réseau de recherche CanFASD afin de reconnaître le travail d'individus et d'organisations au Canada utilisant des approches novatrices pour améliorer la vie des personnes atteintes de Trouble du spectre de l'alcoolisation fœtale (TSAF).
Le prix porte le nom de Claudette Bradshaw, ancienne députée fédérale, championne de la femme en situation de pauvreté et l'une des premières défenseurs de l'importance de s'attaquer au problème de l'exposition prénatale à l'alcool. Mme Bradshaw a récemment pris sa retraite du conseil d'administration de CanFASD. Ce prix reconnaît son dévouement et son impact dans le domaine du TSAF, de l'éducation précoce et du sans-abrisme.
Les récipiendaires de ce prix inaugural sont une équipe de fournisseurs de services du Centre d'excellence en TSAF du Nouveau-Brunswick, membre de l'autorité du Réseau de santé Vitalité. Leur modèle de prestation de services Capteur de rêves est ce qui est reconnu par ce prix.
Le Capteur de rêves est un modèle novateur conçu en partenariat avec les aînés autochtones. Il fournit aux prestataires de services un cadre leur permettant d’adapter leurs ressources et leurs supports à chaque client. Il prend en compte les compétences et les besoins non seulement du client, mais également de son système de soutien. Cette pratique holistique, axée sur les personnes, garantit que les clients autochtones atteints de TSAF et les personnes qui les entourent soient impliqués dans le soutien de l'individu tout au long de sa vie. Le modèle de prestation de services Capteur de rêves sert aux collectivités des Premières nations, et le centre d’excellence TSAF du Nouveau-Brunswick a aussi mis en œuvre cette approche auprès de tous ses clients de la province.
Claudette Bradshaw remettra ce prix à la Dre Nicole LeBlanc du Réseau de santé Vitalité et à Annette Cormier du Centre d'excellence en TSAF du Nouveau-Brunswick à Moncton, au Nouveau-Brunswick, le 9 janvier 2020.
Citations:
«Je suis très honorée de prêter mon nom à ce prix et ravie de pouvoir présenter ce prix à une organisation qui fait un travail incroyable pour améliorer la vie des personnes atteintes de TSAF. »
Mme Claudette Bradshaw, ancienne membre du conseil d’administration de CanFASD
«Nous sommes ravis de présenter ce Prix de l'innovation au Centre d'excellence en TSAF pour son programme unique Capteur de rêves. CanFASD veut inciter les autres à penser de façon créative lorsqu'ils travaillent avec des personnes atteintes de TSAF et à créer de l'espoir grâce à ces histoires positives. »
Audrey McFarlane, directrice générale, CanFASD
À propos de CanFASD:
CanFASD est le premier réseau national de recherche sur les troubles du spectre de l’alcoolisation fœtale au Canada (TSAF). CanFASD travaille en collaboration avec des chercheurs et des partenaires de tout le pays pour traiter les complexités du TSAF. Notre mission est de produire et de maintenir des recherches nationales concertées pour tous les Canadiens, menant à des stratégies de prévention et à de meilleurs services de soutien pour les personnes touchées par le TSAF.
Pour parler à quelqu'un au sujet de la cérémonie de remise du Prix Claudette Bradshaw, veuillez contacter:
Annette Cormier, B.Sc. Inf.
506-869-3571
annette.cormier2@vitalitenb.ca
Pour plus d’information sur CanFASD, veuillez consultez notre site web ou contactez:
Victoria Bailey
Coordinatrice des communications, CanFASD
705-331-8529
victoria.bailey@canfasd.ca