This letter had a big impact on K’s situation. Not only did it help her feel better and more empowered to share her story, but her teacher also made changes to improve the classroom environment.
Feature Friday: Solutions for Kids in Pain (SKIP)
Written by Dr. Katie Birnie I was thrilled to host CanFASD’s webinar on Pain as Experienced by People with FASD in November 2020 in my role as Assistant Scientific Director of Solutions for Kids in Pain (SKIP). SKIP is a knowledge mobilization network based at Dalhousie University, co-directed by Children’s Healthcare Canada, and funded by the Networks of Centres of Excellence … Read More
What FASD is: a caregiver’s perspective
When asked to write this blog on what FASD means to me, I struggled. FASD is a complicated disability with many challenging aspects. I finally decided that, in my experience, FASD to this point has meant missed opportunities.
A caregiver’s perspective on what FASD is
I often wonder if my child’s FASD was consistently recognized from a disability lens, while framed within a strengths-based approach for interventions and support, would life be just a slight bit easier to manage?
What FASD Means to Me
Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.
“Why Red Shoes?”
Why did I choose to wear red shoes, and what do they signify to me? That is not exactly an easy question to answer in a short time, but please let me attempt to do that here.
The Fetal Alcohol Spectrum Disorder (FASD) Patient Journey Project
By engaging persons with lived experience, we were able to identify and inform service enhancement opportunities in FASD awareness, FASD assessment and diagnosis, FASD care planning and transitions, community-based FASD services and supports, addiction and mental health services, housing support services, education services, and correctional services.
#FeatureFriday – FASD in Canadian news
People with fetal alcohol spectrum disorder (FASD) can have difficult and stigmatizing experiences throughout their lives, as can women who drink alcohol while pregnant. For people who have never knowingly met someone with FASD, the news media could play a key role in shaping their understanding of FASD, alcohol, and pregnancy.
Feature Friday: Mary Ann Bunkowsky
Mary Ann is a mother of two boys. Her oldest is 14 years old and has an FASD diagnosis. Her younger son is 11. He has been diagnosed with a number of neurodevelopmental difficulties, including Autism, but she has been unable to get an FASD diagnosis for him because they have no proof of prenatal alcohol exposure. Mary Ann is … Read More
#FeatureFriday – Provincial FASD Awareness Surveys
This is how our study came to be. We realized there are a number of different tools and questions surveys use to try and measure the same thing: FASD awareness. We wanted to evaluate how effective these tools were in getting an accurate measurement of this concept.
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