Below is a list of ongoing research studies currently looking for participants.

Caregivers

C.A.R.E. Caregiver Approaches, Resiliencies, and Experiences
FASD is a complex disability. Caring for someone who has FASD comes with unique challenges and successes. Unfortunately, there has not been much research to understand the whole experience of caring for someone with FASD across the lifespan. This study aims to learn about the lived experiences of people who care for someone with FASD.

Exploring Cannabis Use and Effects in Adults with FASD – Caregivers
The purpose of this survey is to gather feedback from caregivers and front-line staff who live in Canada and work with adults who have FASD or a related disorder. Caregivers include close family members, foster parents, guardians, or residential care staff taking care of an adult with FASD or a related disorder, and has regular personal contact with the person with FASD.

Evaluating Strengths and Protective Factors in Justice-Involved Youth with FASD
Caregivers of youth with FASD in Canada who have experienced involvement in the criminal justice system as adolescents or young adults (12-24 years) are invited to participate in a study. Additional inclusion criteria for eligible caregiver participants in this study include residing in Canada, English-speaking, who currently or historically (within the past five years) have cared for a youth with FASD that has been justice-involved during the indicated age span. You will be asked about strengths, protective factors, and outcomes. The interview will take approximately 45 minutes. Participants will receive a $20 gift card to Amazon.ca for their time. Learn more.

People with FASD

Exploring Cannabis Use and Effects in Adults with FASD – Adults with FASD
You are being asked to be in this study because you are an adult with Fetal Alcohol Spectrum Disorder (FASD). Some people with FASD use pot (also known as marijuana, weed, cannabis) to help them with health problems. We are looking for adults with FASD who have used pot and adults with FASD who have not used pot to complete this survey.

Legal Decision-Making in Youth – Youth and Young Adults
PLAN Lab is inviting youth and young adults between the ages of 12 and 24 with and without FASD who currently reside in Canada and speak English to participate in this study. The private meeting will take up to 2.5 hours, over one or two sessions, with breaks. Currently, the study meetings are taking place virtually via Microsoft Teams. Participants will be asked to read stories about a crime, make legal decisions, and answer interview questions about themselves, their decision-making, and knowledge of the legal system. Finally, participants will be asked to do some problem-solving activities to better understand their thinking and decision-making. Participants will get up to $40 for participating in this study, including $35 for their time, and an opportunity to win an additional $5 in prize money when you play a computerized game. Learn more.

Professionals

Evaluating the Psychotropic Medication Algorithm for FASD
Dr. Mela and a team of 12 multidisciplinary international experts spent over 2 years developing a decision-tree style medication algorithm to guide prescribers as they see patients with Fetal Alcohol Spectrum Disorder/Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (FASD/ND-PAE). This survey is to be completed by prescribers who are using the medication algorithm with their patients.

Exploring Cannabis Use and Effects in Adults with FASD – Frontline Staff
The purpose of this survey is to gather feedback from caregivers and front-line staff who live in Canada and work with adults who have FASD or a related disorder. Front-line staff includes people who work in a profession that involves regularly providing direct services to an adult with FASD or a related disorder (i.e., support/caseworker, social worker, educational assistant, mentor, occupational therapist, speech-language pathologist, psychologist, therapist, or job coach).

Psychological Service Provision to Children and Youth in School-Relevant Context Surveys
We are inviting psychologists and psychological associates to participate in a survey examining best practices when working with children/youth who may have FASD in school-relevant contexts (30-45 min). Participants will be entered to win one of five clinical textbooks about FASD (1 in 60 odds of winning). If you would like to participate and find out more about the study, please link on this link.