The complexity of FASD necessitates a human rights approach to supporting people with this disability. However, supports and services are still lacking for people with FASD and it remains a low priority in Canada for research and policies informing resources and services.
Not a lot of research has been done to understand the full experience of caring for someone with FASD across the lifespan. We are doing a study to collect information from caregivers of individuals with FASD. We want to better understand their unique perspectives and capture their wisdom about people with FASD.
While engaged in my research, I often reflect on questions such as why do people feel that they need alcohol? What does alcohol mean to people in the context of their individual lives and circumstances? What fuels someone’s desire to drink? My own research, as well as popular culture writing such as Ann Dowsett Johnston’s book Drink: The Intimate Relationship Between Women and Alcohol, has made me think long and hard about how alcohol use in society is normalized.
How health care providers communicate with women about alcohol use during pregnancy is very important for FASD prevention. The authors of this study evaluated 61 midwives in a southwestern U.S. state to understand how their personal alcohol use compared to their professional recommendations about alcohol consumption during pregnancy