Every year on December 3, the world observes the International Day of Disabled Persons, a day established by the United Nations in 1992 to honor the rights, dignity, and invaluable contributions of people with disabilities. Today, over one billion people worldwide have some form of disability. This includes those with Fetal Alcohol Spectrum Disorder (FASD), which impacts roughly 4% of the Canadian population.
Adults with disabilities too often encounter barriers to healthcare, employment, and full participation in their communities, limiting their independence, opportunities, and wellbeing. When barriers are removed and people with disabilities are empowered to participate fully, communities thrive. This idea is central to the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD).
Using the UNCRPD
The UNCRPD is a practical framework for improving policies, services, and outcomes for individuals with FASD. By applying the principles of the UNCRPD, advocates, service providers, and policymakers can work toward meaningful change in areas such as:
- Accessing diagnostic and intervention services
- Raising public awareness of FASD
- Ensuring safe and supportive housing
- Addressing the overrepresentation of people with FASD in the legal system
Our UNCRPD issue paper explores exactly how the convention can be applied to FASD. It also offers practical suggestions for turning these rights into action. To make the UNCRPD more accessible, we created a Plain Language Guide for individuals and families. This guide highlights key terms and definitions, helping people understand their rights and empowering them to advocate confidently for themselves or their loved ones.
National Disability Navigation Services
Programs like the National Disability Navigation Services (NINS) demonstrate the impact of person-centered support for people with disabilities. Run by Indigenous Disability Canada / British Columbia Aboriginal Network, this is a free Canada-wide program helping eligible Indigenous persons and families access disability-related benefits. Available in every province and territory, NINS offers one-on-one help with applications and appeals, including paperwork, communication with healthcare providers, and coordination with federal, provincial, and community programs. They support access to benefits like the Disability Tax Credit, Registered Disability Savings Plan, Canada Disability Benefit, and more.
Some ways NINS supports clients with FASD include:
- Multiple communication options: text, email, phone, or virtual/in-person meetings, with written follow-up for clarity.
- Step-by-step guidance: breaking down tasks to reduce overwhelm.
- Practical help: completing forms, booking appointments, or creating online accounts on behalf of clients.
- Collaboration: working alongside trusted contacts like family, healthcare providers, or community workers.
- Clear, trauma-informed guidance: assisting with deadlines and requesting extensions when necessary.
Addressing systemic barriers
Despite supportive programs like NINS, significant gaps remain. In 2022, 66% of Canadians with disabilities reported at least one unmet need due to system failures. Additionally, 45% of racialized Canadians experienced discrimination in the past five years. These numbers highlight the urgent need for awareness, inclusion, and equitable access to services.
FASD is recognized as a public health concern, yet Canada still lacks a comprehensive National FASD Framework. This is why Bill S-234 is so critical. Currently awaiting review from the Social Affairs, Science and Technology, the Bill represents a national commitment to coordinated leadership, sustained investment, and equitable services for individuals with FASD.
Building an inclusive future
Providing accessible, personalized services and removing systemic barriers can be the difference between struggling with bureaucracy and living with independence. This International Day of Disabled Persons, consider how you can contribute to a more supportive community. Small actions – like learning more through CanFASD’s online courses – can have a meaningful impact. And together, by supporting initiatives like the National FASD Framework Bill, we can ensure that all Canadians with FASD have the resources, inclusion, and opportunities they deserve.