Family Advisory Committee Archives

Why it is Important to Include the Voice of Families in Research

canfasdblogMay 13, 2022Family Advisory CommitteeLeave a Comment

Sunday May 15th is the International Day of Families. In honour of this celebration, we asked members of our Family Advisory Committee why they believe it is important for families to be included in research on FASD. Here are some of their responses:

Join Our Family Advisory Committee!

canfasdblogApril 13, 2022CanFASD Announcements, Family Advisory CommitteeLeave a Comment

FAC members left to right: Alicia Munn (New Brunswick), Tammy Roberts, Co-chair (Northwest Territories), Shana Mohr (Saskatchewan), Ray Marnoch (Yukon), Wanda Beland (Alberta), Dorothy Reid, Co-chair (British Columbia) and Marsha Wilson (British Columbia). Absent are Simon Laplante (Manitoba) and Noah Noah (Nunavut).

We are looking for a caregiver from Saskatchewan to join our incredibly dedicated Family Advisory Committee.

Meet Our AFECT Team

canfasdblogApril 28, 2021CanFASD AnnouncementsLeave a Comment

We created the Adult FASD Expert Collaboration Team (AFECT) to make sure the voices of those with FASD are included in the research process.

Be a part of our Family Advisory Committee

canfasdblogFebruary 3, 2021CanFASD AnnouncementsLeave a Comment

We are currently accepting applications from caregivers in New Brunswick to be a part of this committee. If you are interested in joining, please fill out an application form.

What FASD is: a caregiver’s perspective

canfasdblogSeptember 25, 2020Family Advisory Committee, Feature Fridays, Guest Bloggers1 Comment

When asked to write this blog on what FASD means to me, I struggled. FASD is a complicated disability with many challenging aspects. I finally decided that, in my experience, FASD to this point has meant missed opportunities.

What FASD Means to Me

canfasdblogSeptember 11, 2020Family Advisory Committee, Feature Fridays, Guest Bloggers2 Comments

Caregiving has meant making my kids live on their own, knowing that they may fail, but also knowing I needed to keep others safe. Sleeping when I did not know where my child was, praying continually that they would live through the night.

Life with COVID-19 from a Caregivers’ Perspective

canfasdblogAugust 7, 2020Family Advisory Committee, Feature FridaysLeave a Comment

We are finally confident that people will understand what we mean when we say life is unpredictable and sometimes feels like it is spiralling out of control. It took a pandemic to have others experience what our lives are like routinely.

New Webinar: Loss, Grief, and FASD

canfasdblogJune 26, 2020CanFASD Announcements2 Comments

Register now for our newest webinar presentation on Friday July 10, 2020 at 1:00pm EST. Dr. Dorothy Badry, CanFASD’s Child Welfare Research Lead, will be discussing loss, grief, and resilience in relation to FASD along with members from the CanFASD Family Advisory Committee and the FASD community.

Acceptance and Commitment Therapy for Caregivers

canfasdblogApril 22, 2020Family Advisory Committee, Mental Health4 Comments

A member of the CanFASD Family Advisory Committee recently had the opportunity to participate in a research program that gave caregivers of individuals with FASD the skills to better manage the challenges and stresses of their daily lives using Acceptance and Commitment Therapy (ACT).

Feature Friday: Mary Ann Bunkowsky

canfasdblogApril 3, 2020Feature Fridays, Guest Bloggers3 Comments

Mary Ann is a mother of two boys. Her oldest is 14 years old and has an FASD diagnosis. Her younger son is 11. He has been diagnosed with a number of neurodevelopmental difficulties, including Autism, but she has been unable to get an FASD diagnosis for him because they have no proof of prenatal alcohol exposure. Mary Ann is … Read More