A FASD Story: Creating Space for Voices through Art Making

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Written by Candice Burnett, C. DKATI., Professional Art Therapist and Concurrent Mental Health and Substance Use Clinician.


“If we are brave enough to share our artwork and stories, maybe others will, too.” This is one of many quotes that remain in my heart today.  

My name is Candice Burnett, and I recently completed my post-graduate diploma in Art Therapy at the Kutenai Art Therapy Institute (KATI). As part of my capstone requirements for graduation, I co-created an art therapy workbook with five adults with Fetal Alcohol Spectrum Disorder (FASD) entitled A FASD Story: Creating Space for Voices through Art Making. This art workbook illustrates and provides strengths-based art invitations alongside personal stories shared by the research group members during six art therapy group sessions.  

A FASD Story is designed to be a supportive resource for individuals with FASD, caregivers or parents, support workers, or therapists. It endeavors to create a shared language through art that emphasizes and builds on the strengths of individuals with FASD through creativity, storytelling, and metaphorical meaning-making of their feelings and living experiences.  

The Bookshelf 

A bookshelf helps provide a stable, organized, and safe environment to preserve books’ condition. So, too, did I want to provide a contained and safe space for my co-researchers who were willing to embark on group art therapy and collaborate on a workbook for their community. 

Before the group began, I considered these individuals’ quality of life (QOL) as it related to their living experiences with FASD and the impact art therapy might have on their daily lives. Using the affected brain domains, I connected the benefits of art therapy with the potential strengths that could be built upon within the art therapy sessions:  

Affected Brain Domain  Benefit of Art Therapy (Need)  Strengths Maximized (Goal) 
Academic Achievement  Metaphor to support abstract concepts  Validation of their worldview 
Attention  Consistent completion of the artwork  Feeling successful in the time spent 
Cognition  Planning and processing artwork  Increased confidence in autonomy 
Language  Art as a universal language  Express complex ideas non-verbally 
Memory  Imagery to access unconscious  Empowered to interpret our memories 
Executive Functioning  Small choices to complete artwork  Taking an active role in life decisions 
Adaptive behaviour, social skills & communication  Making art, listening and being witnessed increases social interest and empathy  Deepens connection and yearning to be around others with shared experiences 
Motor Skills  Pleasurable movement (cutting, gluing)  Enjoyable play 
Affect Regulation  Colours, materials & symbols to express  Safe expression of emotions 
Sensory Processing  Experimentation in a safe space   Safety for exploring change 

The Book 

A book can hold invaluable insights, inspiration and new perspectives. So do individuals with FASD. As a therapist, I felt my responsibility was to create a consistent environment that allowed our research group to have a full experience within a safe space. Each week I would: 

  • reach out to each participant individually using their preferred means of contact and remind them of the time and day of the session;  
  • use this opportunity to learn about their day and current circumstances in life, which would better inform the art therapy session; 
  • chose an appropriate amount of materials that were presented in an organized fashion so as not to overwhelm the eye; 
  • set up the tables and chairs in the same way with the offering of some herbal tea; 
  • provide individual chairs to support any physical ailments and provide ease; 
  • have as much natural light as possible and dim any artificial lighting. 

Providing this consistent and adaptable environment supported our research group in finding physical and emotional safety, allowing them to act as a source of regulation for one another’s shared experiences while fostering greater learning and an increased sense of self-compassion and empathy for themselves and each other.  

The Pages of the Book 

The pages of a book hold important text that guides the reader through their experience. Our research group took the same approach when creating A FASD Story. Prior to starting art therapy sessions, the research group members were invited to come to a brainstorming session to support their own art therapy goals and vision for the art workbook.

During brainstorming, the research group members expressed their desire for the creative process to support them in re-creating their thoughts and words into non-verbal works for art. They prioritized wanting support in emotional regulation, decision-making within their life domains, connecting with themselves and others, and, most importantly, communicating their voices to feel heard and share the value of art therapy with others with FASD. This insight provided direction for the art invitations that would become the art workbook.  

The Text on the Pages 

Just as the text on the pages of a book conveys the core message, knowledge or story, so too did the artwork and stories of their lives. These stories included both challenges and strengths.  

Within the six art therapy sessions, the group members were empowered to choose what art invitation they would like to work on based on their living experiences. A FASD Story demonstrates what is possible when an inclusive space and a sense of safety inspire individuals to use their artwork and voices to share their stories of FASD. Perhaps most notably, this sharing of their experiences enabled the co-creators to connect with, relate to and achieve healthy outcomes for themselves and their community in a wholly self-determined way. 

A final brainstorming session allowed the research group members to contribute their final thoughts on how this book would be most meaningful to others with FASD. The group members’ main message rang true throughout the entire process: “If we are brave enough to share our artwork and stories, maybe others will too.” 

Closing the Book 

We invite others to create their stories through art and experience the impact of acceptance, relatability, and belongingness through creativity, storytelling, and art-making.


Candice Burnett (she/her) is a wife, dog mom, and mountain biker. She holds a Post-Baccalaureate Diploma in Art Therapy. Candice is committed to contributing to healthy outcomes for individuals with FASD and hopes that her co-created research will help individuals with FASD fully realize the gifts they can offer the world.

 

 

 

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