Below is a list of ongoing research studies and projects currently looking for participants.
CAREGIVERS
Daily Parenting in Families of Adolescents with FASD
Researchers at the Enhance Lab are looking for caregivers of adolescents with FASD to be part of a Family Advisory Board for a new project on daily dynamics in parenting. Caregivers must be available to attend virtual meetings to give feedback on the study plan and the results of the study. To be eligible you must care for an adolescent with FASD (between 12 and 18 years old), live Canada, the US, the UK, Australia, or New Zealand, and have access to technology to attend virtual meetings. If you are interested in participating in our committee or have any questions, please contact: enhancelab@ucalgary.ca
C.A.R.E. Caregiver Approaches, Resiliencies, and Experiences
FASD is a complex disability. Caring for someone who has FASD comes with unique challenges and successes. Unfortunately, there has not been much research to understand the whole experience of caring for someone with FASD across the lifespan. This study aims to learn about the lived experiences of people who care for someone with FASD.
INDIVIDUALS WITH FASD
Legal Decision-Making in Youth – Youth and Young Adults
PLAN Lab is inviting youth and young adults between the ages of 12 and 24 with and without FASD who currently reside in Canada and speak English to participate in this study. The private meeting will take up to 2.5 hours, over one or two sessions, with breaks. Currently, the study meetings are taking place virtually via Microsoft Teams. Participants will be asked to read stories about a crime, make legal decisions, and answer interview questions about themselves, their decision-making, and knowledge of the legal system. Finally, participants will be asked to do some problem-solving activities to better understand their thinking and decision-making. Participants are eligible for compensation for their time. Learn more.
PROFESSIONALS
We are inviting professionals, clinicians and service providers who work in forensic and legal contexts to participate in an online survey examining practices around identifying and screening for FASD. The goal of this research is to better understand current practices and needs to inform the development of helpful tools and resources to support improved recognition, understanding, and support of people with FASD in criminal justice contexts. We are interested in hearing from those with and without experience identifying or screening for FASD in their role.
This study is being conducted by Dr. Kaitlyn McLachlan at the University of Guelph, Dr. Jacqueline Pei and Dr. Melissa Tremblay from the University of Alberta, Dr. Mansfield Mela at the University of Saskatchewan, Dr. Katy Flannigan from the Canada FASD Research Network, and the Asante Centre.
If you would like to participate or find out more about this study, you can access the survey here or contact us at planlab@uoguelph.ca or by phone: 518-824-4129, extension 53622
Evaluating the Psychotropic Medication Algorithm for FASD
Dr. Mela and a team of 12 multidisciplinary international experts spent over 2 years developing a decision-tree style medication algorithm to guide prescribers as they see patients with Fetal Alcohol Spectrum Disorder/Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (FASD/ND-PAE). This survey is to be completed by prescribers who are using the medication algorithm with their patients.
Prenatal alcohol exposure web-based brain assessment study
The University of Minnesota Fetal Alcohol Spectrum Disorders (FASD) Program have been awarded a research grant to study the use of a novel web-based brain assessment tool called BRAIN-online in identifying areas of cognitive challenges in youth with PAE. If you have a child between the ages of 8 and 16 who was exposed to alcohol during pregnancy, they would like to speak with you about participating in this study. Find out more.
Movement Behaviours and Health Indicators in Children with a Chronic Medical Condition or Disability
Researchers at the Child Health & Exercise Medicine Program at McMaster University are looking for 12 to 17 years old who are living with a chronic medical condition or disability and parents or guardians of 12 to 17 year-olds who are living with a chronic medical condition or disability. Learn more and participate.
Health Outcomes for Individuals with FASD – Adults with FASD
Researchers at the Healthy Generations Lab are looking for individuals with FASD (19+ years old) to participate in a new research study about health/mental health. To be eligible, you must be able to come in to our study site at the University of Calgary, in person, for approximately 3 hours. Email: healthygenerations@ucalgary.ca. Call: 403-220-5274. Fill out the online survey.
Suicidality in Individuals with FASD
The Enhance Lab is looking for clinicians and wellness workers in Canada who have supported someone experiencing suicidality. Learn more and participate.
International FASD and Justice System Study
Dr. David Junior Gilbert and his team want to understand why people with FASD may become involved with the police. They are looking for adults with FASD and caregivers of young people with FASD. Learn more and participate.
Parenting Adolescents with FASD
Kelsey Friesen (University of Calgary) is interested in learning more about adolescent and caregiver characteristics, family factors and parenting behaviors in families of adolescents with FASD on a daily basis. Learn more and participate.
New Brunswick youths diagnosed with FASD
Would you like to contribute to Fetal Alcohol Spectrum Disorder (FASD) research? Researchers from Vitalité Health Network, the Maritime SPOR Support Unit, and Université de Moncton would like to conduct 30-60-minute telephone/Zoom interviews with New Brunswick (NB) youths diagnosed with FASD at the NB FASD Centre of Excellence who would like to share their experiences navigating the healthcare system before being referred to the Centre. If you or your child is interested in participating, please email nbfasdstudy@gmail.com or call 506-850-5035. All participants will receive compensation for their time.
Des jeunes du Nouveau-Brunswick qui ont reçu un diagnostic TSAF
Aimeriez-vous contribuer à la recherche sur le trouble du spectre de l’alcoolisation fœtale (TSAF)? Les chercheurs et chercheuses du Réseau de santé Vitalité, de l’Unité de soutien SRAP des Maritimes et de l’Université de Moncton aimeraient mener des entrevues téléphoniques/Zoom de 30 à 60 minutes avec des jeunes du Nouveau-Brunswick (N.-B.) qui ont reçu un diagnostic TSAF au Centre d’excellence TSAF du N.-B. et qui aimeraient partager leurs expériences avec le système de soins de santé avant d’être dirigé(e)s vers le Centre. Si vous ou votre jeune souhaitez y participer, veuillez envoyer un courriel à nbfasdstudy@gmail.com ou téléphoner au 506-850-5035. Tous les participants et toutes les participantes recevront une compensation en guise de remerciement pour leur temps.
An Exploratory Study of the Identity Experiences of Young Adults with FASD
Vannesa Joly (University of Alberta) is interested in learning about the identity experiences of young adults with FASD. She is aiming to recruit two separate groups of participants: young adults with FASD between the ages of 18 and 25 years and caregivers of individuals with FASD. Learn more and participate.
Transition to Adulthood
Lauren Gnat and Dr. Melody Morton Ninomiya (Wilfrid Laurier University) are looking for adults with FASD or people who support an adult with FASD to tell them about how the transition to adulthood has been. Learn more and participate.
Brain Development in Children and Youth with Prenatal Alcohol Exposure
The Developmental Neuroimaging Lab is looking for children and youth (7-18 years old) with and without prenatal alcohol exposure (PAE) to participate in a study at the Alberta Children’s Hospital in Calgary or the University of Alberta in Edmonton. Learn more and participate.
UBC Health Study
