FASD is a complex disability. Caring for someone who has FASD comes with challenges and successes that are unique and important to acknowledge. Not a lot of research has been done to understand the full experience of caring for someone with FASD across the lifespan. We are doing a study to collect information from caregivers of individuals with FASD. We want to better understand their unique perspectives and capture their wisdom about people with FASD. The specific goals of this research are to:
- Learn about the unique experiences, concerns, strengths, and successes of caregivers with FASD
- Understand more about individuals with FASD through the eyes of their caregivers
What are we asking you to do?
We are looking for caregivers of people with FASD in Canada or worldwide to complete our online survey. In total, the survey should take about 2 hours, but it does not need to be finished all at once. You can take as many breaks as you need, and we have included short self-care activities throughout the survey for you to pause and reflect.
There is no monetary compensation for participating in this research. Instead, we will be offering you a “Words of Wisdom” resource to express our gratitude for your participation. This resource will be a compilation of all the advice that study participants offer to caregivers of people with FASD.
Why is this important?
The information you share with us will provide researchers with a thorough understanding of what caregiver’s experience. Your experiences will also help inform policy and the development of support services. We also hope that this survey will allow you to reflect on the challenges you have overcome, the successes you have had, and the lessons you have learned along the way.
If you or someone you know are interested in completing the survey, follow this link. If you do not have access to the internet, contact Katy Flannigan and katy.flannigan@canfasd.ca to make alternative arrangements.